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Difference between revisions of "March 07, 2017 CBCC Conference Call"

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|| x|| [mailto:Kathleen_Connor@comcast.net Kathleen Connor] Security Co-Chair
 
|| x|| [mailto:Kathleen_Connor@comcast.net Kathleen Connor] Security Co-Chair
 
||||x|| [mailto:mike.davis@va.gov Mike Davis]  
 
||||x|| [mailto:mike.davis@va.gov Mike Davis]  
−
||||.|| [mailto:johnmoehrke@gmail.com John Moehrke] Security Co-Chair
+
||||x|| [mailto:johnmoehrke@gmail.com John Moehrke] Security Co-Chair
 
||||x|| [mailto:Diana.Proud-Madruga@engilitycorp.com Diana Proud-Madruga] SOA Co-Chair
 
||||x|| [mailto:Diana.Proud-Madruga@engilitycorp.com Diana Proud-Madruga] SOA Co-Chair
 
|-
 
|-
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PGHD definition - (in document, Executive Summary) - defines patient- generated health data (PGHD) as ''health-related data created and recorded by or from patients outside of the clinical setting to help address a health concern''
 
PGHD definition - (in document, Executive Summary) - defines patient- generated health data (PGHD) as ''health-related data created and recorded by or from patients outside of the clinical setting to help address a health concern''
−
* kind of covers 'patient right of access' (would like it made more clear) - do they mean by ''outside of the clinical setting, do you mean without the intervention of a healthcare professional...?''
+
* kind of covers 'patient right of access' (would like it made more clear) - do they mean by ''outside of the clinical setting, do you mean without the intervention of a healthcare professional...?'' [data being generated should have appropriate data provenance]
 
standards that indicate they have met some threshold for patient care
 
standards that indicate they have met some threshold for patient care
 
* extend the definition of patient generated health data; we are enabling patients to direct other providers to send their information--which may be a stretch for patient generated (patient provided)
 
* extend the definition of patient generated health data; we are enabling patients to direct other providers to send their information--which may be a stretch for patient generated (patient provided)
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** FHIR Consent Directive,  
 
** FHIR Consent Directive,  
 
** FHIR CDA Consent Directive
 
** FHIR CDA Consent Directive
 +
 +
Comment ''under challenges''
 +
How do you control the sharing...do we have the ability to do that?  not only do they say the patient 'did it' they also say how the patient shares the data.
 +
* the sharing and control needs to be in place.  i.e. patient sends to doctor A and does not data to go to go to doctor B... are there adequate controls where doctor A will not send to doctor B?
 +
** labeling the data, masking the data? which HL7 standards provide

Revision as of 19:39, 7 March 2017

Community-Based Collaborative Care Working Group Meeting

Back to CBCC Main Page

Meeting Information

Attendees

Member Name x Member Name x Member Name x Member Name
. Johnathan ColemanCBCC Co-Chair x Suzanne Gonzales-Webb CBCC Co-Chair x Jim Kretz CBCC Co-Chair x David Pyke CBCC Co-Chair
x Kathleen Connor Security Co-Chair x Mike Davis x John Moehrke Security Co-Chair x Diana Proud-Madruga SOA Co-Chair
x Mohammed Jafari x Rick Grow x Glen Marshall x Ken Salyards
. Ken Sinn x David Staggs . Steve Eichner x Beth Pumo
x Chris Shawn . Ioana Singureanu x Neelima Chennamaraja x Joe Lamy
x Joseph Quinn . David Tao, Mobile Health . Nathan Botts, Mobile Health . [mailto: ]


Back to CBCC Main Page

Agenda

  1. (05 min) Roll Call, Approve Agenda
  2. Approve Meeting Minutes
  3. (10 min) HL7 coordinated response to ONC-sponsored: Patient Generated Health Data (PGHD) whitepaper, report out on comment consolidation
  4. (05 min) PASS Audit - Diana
  5. (05 min) Security and Privacy Impact Assessment Cookbook (SPIA)
  6. (05 min) FHIR Consent Issue Resolution FRIDAY call update discussion reminder
  7. (05 min) Mobile Health - cMHAFF joint project - David Tao
  8. (25 min)'Medication Reconciliation of for cross-paradigm IG
  2. New Project NIBs? May 2017 Ballot Cycle

NOTE: May WGM DRAFT Agenda created, Joint Meetings were entered based on the HL7 Meeting room invites.

Please contact [mailto:Suzanne.webb@engilitycorp.com Suzanne Gonzales-Webb} if you wish to add agenda items! Thank you!

Minutes

Agenda, Meeting Minutes Approved

PGHD - No responses received.

PGHD definition - (in document, Executive Summary) - defines patient- generated health data (PGHD) as health-related data created and recorded by or from patients outside of the clinical setting to help address a health concern

  • kind of covers 'patient right of access' (would like it made more clear) - do they mean by outside of the clinical setting, do you mean without the intervention of a healthcare professional...? [data being generated should have appropriate data provenance]

standards that indicate they have met some threshold for patient care

  • extend the definition of patient generated health data; we are enabling patients to direct other providers to send their information--which may be a stretch for patient generated (patient provided)
  • by creating these policies and making them a
  • challenge standards bodies to address the needs of healthcare ecosystem
    • do we want to point out the standards HL7 has been working on?
    • patient friendly language standard
    • SLS
    • HCS on security side
    • security/privacy risk documents
    • data provenance
    • data segmentation for privacy (DS4P)
    • FHIR Consent Directive,
    • FHIR CDA Consent Directive

Comment under challenges How do you control the sharing...do we have the ability to do that? not only do they say the patient 'did it' they also say how the patient shares the data.

  • the sharing and control needs to be in place. i.e. patient sends to doctor A and does not data to go to go to doctor B... are there adequate controls where doctor A will not send to doctor B?
    • labeling the data, masking the data? which HL7 standards provide
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