Registry CDEs

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Welcome to the Common Clinical Registry Framework CDEs Wiki!

The Common Clinical Registry Framework (CCRF) project is part of Clinical Interoperability Council (CIC) Work Group

Registry CDEs Project Need:
This project will identify and define, where not already defined, and harmonize a set of common clinical data elements (CDEs) that are generalizable across most clinical registries. For the purposes of this project, by CDEs we mean clinical data elements that are expected to be used in most registries. Data that are generally collected regardless of the type of patient or clinical care provided e.g., demographics, history, immunizations, vital signs, smoking status. This set of CDEs will not contain data that are mostly specific to medical specialties e.g., cardiology data. For more information see the Project Scope Statement.

Project Participants
Facilitator: Seth Blumenthal
Modeling facilitator: AbdulMalik Shakir
Publishing facilitator: Amy Nordo
Vocabulary facilitators: Rob Hausam, Susan Matney, Sarah Ryan
Domain expert representatives: James Tcheng, Chrystal Price
Business requirement analysts: Laura Heermann Langford, Julia Skapik, Anita Walden

CCRF Meeting Minutes

CCRF CDEs Draft

CDEs draft spec sheet, October 2, 2018 (version date)

Project Documentation

CDEs project scope statement, October 2, 2018 (version date)
CDEs October 2018 vetting letter