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Difference between revisions of "PRO FHIR IG Proposal"

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==IG Relationships==
 
==IG Relationships==
  
None
+
SDC IG
 +
US Core IG
  
 
==Timelines==
 
==Timelines==

Revision as of 12:53, 7 August 2018



Patient Reported Outcomes

Patient Reported Outcomes FHIR IG

Owning work group name

FHIR-I

Committee Approval Date:

2018-02-05

Contributing or Reviewing Work Groups

  • Patient Care
  • BR&R
  • O&O


FHIR Development Project Insight ID

1433

Scope of coverage

The Scope of the IG is to use the following resources for Patient Reported Outcomes (PROs) capture and exchange.

  • Questionnaire
  • QuestionnaireResponse
  • Observation
  • ProcedureRequest

IG Purpose

A landscape analysis on the use of PROs in clinical care and research settings were conducted the outcomes of which have identified the lack of standardization in the creation, administration and sharing of PRO data even if they would help with the outcome for patients. In order to improve the use of PRO data in the clinical workflow the following needs have been identified for standardization • Need to identify relevant PROMs for each domain using defined data elements and vocabularies • Need to enable PROM administration within EMRs • Need to enable PROM administration using apps outside of EMRs • Need to share PROM responses to clinicians, researchers and care managers.


Content location

https://github.com/HL7/patient-reported-outcomes


Proposed IG realm and code

U.S

Maintenance Plan

Short Description

This IG provides the necessary guidance to use FHIR for Patient Reported Outcomes.

Long Description

A landscape analysis on the use of PROs in clinical care and research settings were conducted the outcomes of which have identified the lack of standardization in the creation, administration and sharing of PRO data even if they would help with the outcome for patients. In order to improve the use of PRO data in the clinical workflow the following needs have been identified for standardization • Need to identify relevant PROMs for each domain using defined data elements and vocabularies • Need to enable PROM administration within EMRs • Need to enable PROM administration using apps outside of EMRs • Need to share PROM responses to clinicians, researchers and care managers.


Involved parties

ONC

Expected implementations

REACHnet PCORnet CDRN pSCANNER PCORnet CDRN

Content sources

SDC FHIR IG Argonaut Questionnaire Work


Example Scenarios

  • Creation and Administering a Physical Function PRO to a Patient after a hip replacement and scoring the results prior to their next appointment.

IG Relationships

SDC IG US Core IG

Timelines

Comment Only Ballot for Sep 2018 STU Ballot in January 2019

When IG Proposal Is Complete

When you have completed your proposal, please send an email to FMGcontact@HL7.org

FMG Notes