20160628 US Realm SC Call

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US Realm Steering Committee Call Agenda/Minutes Location: 929-752-237		Date: 2016-06-28 Time: 1 PM Eastern
Co-Chairs	Ed/Brett	Note taker(s)	Anne

Attendee / Name
x	Calvin Beebe		Keith Boone		Hans Buitendijk
	Lorraine Constable	x	Johnathan Coleman	x	Ed Hammond
x	Tony Julian	x	Paul Knapp	Regrets	Austin Kreisler
x	Brett Marquard		Ken McCaslin		Nancy Orvis
	Brian Pech	Regrets	Wayne Kubick		Mark Roche
	Sandra Stuart	.	Pat Van Dyke	x	Anne Wizauer
x	Danielle Friend	x	Eric Haas	.	Jenni Syed
	Steve Posnak	.	David Susanto	x	John Roberts
Visitor / Name
	Christol Green		Avinash Shanbhag
no quorum definition

Agenda

Administrivia

• Agenda review
• Review notes from 20160621_US_Realm_SC_Call
• Action Items
  • ACTION: Anne to research if there's a list of all of the US IGs
    • Document located here
  • ACTION: Brett to send document to Anne for posting in minutes.
    • Document located here
  • ACTION: All review and provide input to role of USRSC

Discussion:

• Who is responsible for US extensions?

Minutes

• Ed notes that he will share info with the EC tomorrow on US Real activities, as well as at the board retreat.
• Review notes from 20160621_US_Realm_SC_Call
• Action Items
  • ACTION: Anne to research if there's a list of all of the US IGs
    • Anne started the US Realm list of IGs. Highlighted those that have US Realm in the title - will research the remaining ones and send out to the group.
    • Document located here
  • ACTION: Brett to send document to Anne for posting in minutes.
    • Document located here
  • ACTION: All review and provide input to role of USRSC

Discussion:

• Who is responsible for US extensions?
  • This is a FHIR-specific question. Race, for example, is not in the core resource. Who owns/maintains US-specific extensions? Ed: doesn't the extension belong to whomever created the extension? Brett: The extension is used across several US guides. Must be coordinated across groups. Ed: Should be in a registry and then harmonization across groups. Brett: It's done now through informal communication. Brett: There is a registry in the FHIR build that lists all the extensions that have been created in HL7. Danielle: What is the process for getting them on that registry? Brett: If you put it in the build it gets on the registry. Ed: We need policy statements that answer some of these questions. Avinash: Is some of the ONC regulations and work on Argonaut driving this need? Brett: Yes, that's where some of these extensions were born. To reframe the question: Who is responsible for regulatory requirements that necessitate specific extensions? Avinash: ONC can be the starting point. Some extensions are required by government and some are not. Ed: We might want to carve out a time at the next WGM and invite people representing US Realm to talk about some of these issues and get some feedback on what's happening. CDC is creating some extensions, FDA is creating some, and these may not go to ONC. Argonaut is creating their own registries that include extensions. Calvin: When you ask who is responsible, is it balloting? Eric: That's part of it. Ed: When do you ballot an extension? Brett displays the US extensions within DAF Patient. Ed: How is this separate from core? Brett: Eventually all of the US stuff won't be part of the core build. Eric: There are core extensions in the build, but then there are profile extensions for IGs and the intention is for the IGs to be pulled out of the spec.
  • Calvin: We need to lay out what the responsibilities are to manage these extensions. Is it a working group? A management group? A governance group? What is being asked for? Who is creating the content of DAF? Brett: Developed by INM and FHIR-I. Ed: Extensions will cover more than one WG in terms of content. Need to discuss with Wayne and Ken on how to manage some of the details. We need a registry process where we look at the extensions and make sure they're uniquely different. To whom do we propose this activity? Avinash mentions the repository project that Lenel James proposed in Montreal. Brett: There would be benefit for us to coordinate this effort as part of our regular review process. Ed: Some of these aren't part of a PSS. We need some way of bringing them into the loop. Need to be able to know what's out there. Brett: Do we collect? Do we review and certify? Do we arbitrate? Need to consider our role. Johnathan: There may not be a one size fits all. Not sure we can force everything through one mechanism. Paul: The Lenel James project is working out the governance of this project, being led by US payers. Ed: We should engage the folks from that project. Christol: I am working on that project and we're just starting, and we do want to bring the work back to this group. Will stay in touch and jump in on these calls.
    • ACTION: Ed to touch base with TSC, Grahame, etc. to look at how we might tackle this.
• Adjourned at 1:54 PM Eastern

Meeting Outcomes

Actions

Next Meeting/Preliminary Agenda Items 20160705US Realm SC Call Tuesday at 1 PM ET

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