October 07, 2014 CBCC Conference Call

Community-Based Collaborative Care Working Group Meeting

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Attendees

x	Member Name		x	Member Name		x	Member Name		x	Member Name
.	Johnathan ColemanCBCC Interim Co-Chair		x	Suzanne Gonzales-Webb CBCC Co-Chair		x	Jim KretzCBCC Interim Co-Chair		.	Max WalkerCBCC Co-Chair
.	Wende Baker		.	Bill Braithwaite, MD		x	Kathleen Connor		.	Kathy Odorow
.	Steve Eichner		x	Rick Grow		.	Paul Knapp		.	Mohammed Jafari
.	Lisa Nelson		.	Mike Lardiere		x	Diana Proud-Madruga		.	Harry Rhodes
x	Lori Simon		.	Ioana Singureanu		.	Tony Weida		.	Tim McKay, Kaiser
.	Maryann Juurlink		.	Steve Daviss		.	Kate Wetherby		.	Neelima Chennamaraja
.	Dina Passman		x	Serafina Versaggi		.	Marlowe Greenberg		.	Chris Clark, WV
.	Ken Ortbals		.	Matt Peeling		.	Tracy Leeper		.	Brian Newton
.	Hady Khorasani		.	Amanda Nash		.	Ken Salyards		.	_Bob Yencha
x	Rita Torkzadeh		.	.		.	_		.	_

Agenda

1. (05 min) Roll Call, Approve Meeting Minutes from Sept 30
2. (05 min) Data Provenance - Update
3. (10 min) Doodle Poll - New Meeting Time -
4. (10 min) Patient Friendly Natural Language - Update
5. (10 min) CBCC WGM September Agenda Meeting Minutes
6. (05 min) Privacy Consent Directives - Ballot Reconciliation
7. (05 min) Patient Friendly Natural Language - Ontology briefing

Meeting Minutes

Meeting Minutes from September 30.

Privacy Consent Directives - Ballot Reconciliation MOTION (Kathleen/Diana): Proposing a Data Provenance vocabulary (Christmas hook and ornament analogy); "Provenance Assigned Device"

ProvenanceAssignedDevice concept domain, codes, value set for November Harmonization

• Currently, there is no known code system outside of HL7 that does this.
• Proposal needs to be submitted to HL7 in two weeks, leaving a few weeks for the Vocabulary WG to fine-tune/review.
• Final proposal is due in December.

Objections: 0; Abstentions: none Pass: 6

Patient Friendly Language - Kathleen Presented on the idea of a CBCC FHIR consent directive suite, explaining four things that need to happen:

• FHIR PFL/Consent2Share Questionnaire Resource Profile
• FHIR PFL/Consent2Share Questionnaire Answer Resource Profile
• FHIR Consent Directive Resource Profile (FHIR Contract Resource)
• FHIR Privacy/Security/Trust Policy Resource Profile (FHIR Contract Resource)

The patient part is more than just a patient friendly vocabulary GUI. It includes both detailed and high-medium-low privacy pieces. There is the notion of the pre-negotiated policies that the patient can select.

1. FHIR PFL/Consent2Share 'Questionnaire Resource Profile' (FHIR Questionnaire Resource): This is the basis for developing template Consent2Share forms based on FHIR Privacy Policy Resource Profile.
2. FHIR PFL/Consent2Share 'Questionnaire Answer Resource Profile' (FHIR Questionnaire Answer Resource): Currently, there is a Questionnaire Resource Proposal and Patient Care decided at May 2014 WGM to create a Questionnaire Answer Resource although there is no formal proposal for it yet. Presumably, the questionnaire is the template with the questions and possible answers while the Questionnaire Answers is an instance of the template with selected responses, which are captured in or referenced by other Resources.
3. FHIR 'Consent Directive' Resource Profile (FHIR Contract Resource): This is populated with Security Label encoding of a FHIR PFL/Consent2Share Questionnaire Answer instance.
4. FHIR 'Privacy/Security/Trust Policy' Resource Profile (FHIR Contract Resource): This is an encoded policy. In the case of the FHIR CD Suite - a FHIR Privacy Policy is encoded using Security Labels, which are the basis for a FHIR PFL/Consent2Share Questionnaire Resource Profile instance.

• Patient Health Ecosystem where patient privacy preferences may be stipulated without parameters that are set up by HIPAA, 42 CFR Part2, Title 38 Section 7332, state privacy laws more restrictive than HIPAA and enterprise privacy policy domains to which providers and other covered entities must comply.
• Enterprise Health Ecosystem where patient privacy preferences are restricted to those permissible under enterprise privacy policy domains.
• CD Questionnaire questions and answers should be formulated using PFL - i.e., terms recommended for communicating health concepts to patients (e.g., Group Health Patient Health Education Resources, which has tools and PFL Word Lists).

Consent as a Contract: Both Bernd, MikeD in PMAC; it was highly influential in the Security/Privacy DAM Consent will be a constraint on 'PrivacyPolicy'

Doodle Poll (new meeting time options): https://doodle.com/q8f9zwmsnfpu926i Consensus reached on new time: 2 p.m. Eastern on Tuesdays. The new meeting time will go into effect next week (Tuesday, October 14).

Meeting Adjourned at 1103 PDT