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FHIR Consent Dec 2, 2016

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HL7 CBCC FHIR Consent Working Meeting

Back to FHIR Consent Directive Project Main Page

Attendees

Member Name x Member Name x Member Name x Member Name
x David Pyke CBCC co-Chair X Johnathan Coleman CBCC Co-Chair X Suzanne Gonzales-Webb CBCC Co-Chair X Grahame Grieve FHIR Director
. Alexander Mense Security Co-Chair X Kathleen Connor Security Co-Chair . John MoehrkeSecurity Co-Chair X Glen Marshall
X Jim Kretz . Tarik Idris . Ken Salyards . Diana Proud-Madruga
. M'Lynda Owens . David Staggs X Ken Sinn (Canada) . Beth Pumo
. Rob Horn . William Kinsley . Wayne Kubick . Serafina Versaggi
. Igor Sirkovich . Adrian Gropper X Mike Davis . Mohammad Jafari (VA/ESC)
. Joe Lamy, Aegis . Andrew Rampolla (SSA) X Joseph Quinn (Optum) . none


Back to FHIR Consent Directive Project Main Page

Agenda

  • Roll-call
  • Discussion of Opt-In/Opt-Out possible boolean
  • Discussion of Consent Purpose
  • Other FHIR tracker issues where time permits:
    • CP 11066 There are 4 consent domains listed, not 3. The terms and definitions are not adequte, and are somewhat tautological
    • CP 11065 Summary: Substitute decision maker -> proxy

Minutes

  • Extensive discussion on Consent Purpose (issue 11054)
    • Grahame spoke to the use case of releasing all data that is marked for research versus all data for research
    • Discussion of data marked in persistent storage versus consent applied by decision engine.
    • No resolution as of yet
    • Mike and Kathleen to create FHIR resource samples that illustrate their use case.