201809 Consumer Mediated Data Exchange (CMDE)
Consumer Mediated Data Exchange
Contents
Submitting WG/Project/Implementer Group
Justification
Related tracks
Proposed Track Lead
See Connectathon_Track_Lead_Responsibilities
Expected participants
Roles
Role 1
Source of Record Acts as intermediary
Actor: HIE, EHR, immunization registries
Stores
Role 2
Electronic Consent Management System (eCMS)
Actor: Form filler FHIR SDC Questionnaire & QuestionnaireResponse, resource transformer, consent directive repository
Captures e-consent form and turns it into a computable consent directive
Role 3
IZ Client: Immunization record viewer or client app
Actor: EHR, patient portal, school documentation systems, personal health apps
Allows record to be viewed, managed and further distributed
Role 4
ACS/SLS: Access control system / security labeling service
Actor: Rules Engine
Pulls consent directive to get policy, apply security label, and enforce filtering to the requested IZ resource
Scenarios
Scenario 1
Linda May Shannon, an 18-year-old enrolling freshman is “on her own” for the first time and needs to find and collect her immunization records so that she can share them with her parents. • Linda wants her family to access some information, but not all
• She will create a Right of Access (ROA) consent directive that allows her parents to view her non-sensitive information (i.e. restricts access to HPV)
• IZ Client will request Linda’s immunizations information from SLS for access by her parents
• ACS / SLS will filter what is returned to IZ Client based on Linda’s ROA consent directive
Action:
Precondition:
Success Criteria:
Bonus point: Use CDS Hooks to pull IZ into EHR from IZ registry
Scenario 2
Linda May Shannon, has been accepted to study fine arts during a semester abroad at Sorbonne University in Paris • Linda wants to share her immunization records with the university
• She feels comfortable sharing her sensitive information because it’s governed under the General Data Protection Regulation (GDPR), further use requires consent
• She will create a ROA consent directive for her disclosure of immunizations to the Sorbonne University labeled with GDPR privacy tags
• IZ Client will request Linda’s immunizations information from ACS/SLS so that Linda can send her immunizations to Sorbonne when she’s ready
• ACS / SLS will apply a GDPR label to the immunization resource based on Linda’s ROA consent directive
Action:
Precondition:
Success Criteria:
Bonus point:
Scenario 3
Linda May Shannon is attending the Sorbonne in Paris and steps on a rusty nail. She visits the school clinic to receive a tetanus booster.
• The school clinic asks for Linda’s GDPR consent to file a claim with TriCare • Claim processor applies GDPR Security label and sends to TriCare • TriCare processes the claim and persists the GDPR security label
Action:
Precondition:
Success Criteria:
Bonus point: