201805 Care Plan
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Care Planning and Management
Dedicated Zulip chat stream for this track.
Previous Care Plan Connectathons
- 201801 Care Plan, May 2018, New Orleans, LA
- 201709 Care Plan, September 2017, San Diego, CA
- 201704 Care Plan, April 2017, Chicago, IL
- 201701 Care Plan, January 2017, San Antonio, TX
Submitting WG/Project/Implementer Group
Justification
This track is intended to advance the maturity of FHIR resources for care planning and management (CarePlan, CareTeam, Goal, Condition, and others), the definition of computable clinical protocols (PlanDefinition, ActivityDefinition), and to document industry best practices for improving care coordination using shared care plans and clinical decision support. This work will inform the development of more comprehensive implementation guides and profiles for care management based on FHIR Release 3 (STU), which is the primary target for testing in this track. This connectathon track will be coordinated with the Chronic Conditions track at Clinicians on FHIR where they focus on clinical interoperability and harmonizing differences between the technical and clinical perspectives of FHIR resources.
In addition to advancing the maturity of FHIR resources for care management, this track invites participation by clinicians and implementers who are interested in using these FHIR standards to realize the benefits of comprehensive shared care management coordinated across provider organizations. Two participant roles are included (Care Plan Protocol Creator & CDS Service Requestor) that engage the practitioner community to evaluate and demonstrate use of FHIR care management resources for the active management of a patient's healthcare.
Proposed Track Lead
- Dave Carlson – VHA
- E-mail: dcarlson@ClinicalCloud.solutions
- Zulip: Dave Carlson
Expected participants
The following organizations have indicated an interest in participating in this track:
- Allscripts
- Book Zurman
- Clinical Cloud Solutions
- InterSystems
- Motive Medical Intelligence
- Veterans Health Administration (VHA)
- Your organization here!
Roles
FHIR Data Server
A FHIR server (version 3.0) should support the following resources for care planning, in addition to core clinical data (Patient, Observation, etc):
- CarePlan, Condition, Goal, CareTeam, and other resources referenced by CarePlan.activity.reference
A FHIR server is available for testing with sample data that represent one or more care plan scenarios.
- HSPC sandbox server (FHIR 3.0.1) at https://api-stu3.hspconsortium.org/careplantest/open
- Test data JSON files with several patient care plans are available in a GitHub repository that may be loaded into other FHIR v3.0 servers.
FHIR Knowledge Asset Server
A FHIR server (version 3.0) should support the following resources for knowledge-based care management:
- PlanDefinition, ActivityDefinition, Library
Care Plan Protocol Creator
A FHIR server (version 3.0) should support the following resources for this role:
- PlanDefinition and ActivityDefinition
- Bonus points for using CQL in conditional logic expressions for plan activities
- Create and share care protocol definitions via FHIR server endpoint
- Care guidelines, e.g. for new diabetes diagnosis, or managing the progression of chronic kidney disease
- Order set definitions that recommend modification of activities in existing care plans, e.g. modify medications based on vital sign or lab observation feedback; see CDS integration
CDS Service Requestor
- Coordinate with 201805_CDS_Hooks track
- Invoke a CDS Hooks Service that guides a clinician or a patient toward fulfillment of a Care Plan's goals, or suggests additional activities based on clinical practice guidelines. The CDS Hooks Service provides real-time clinical decision support as a remote service, where the CDS Server is invoked on a desired hook and returns the decision support in the form of CDS cards.
Clinical Scenarios
This track emphasizes dynamic care management scenarios where one or more care plans are created, accessed, or updated by one or more members of the care team during the provision of healthcare, and the care plans are used by a patient or his/her caregivers to review or perform plan activities. These scenarios illustrate communication flow of care plan(s) between a patient, his or her primary care provider, consulted specialists, home health care, telehealth care, and family caregivers involved in management of care for one or more health conditions.
Chronic Kidney Disease Care Management
Our recommended clinical use case is based on the NIH Chronic Kidney Disease (CKD) Care Plan project. Because frequent transitions of care are common among patients with CKD, an electronic CKD care plan could potentially improve patient outcomes by helping to ensure that critical patient data are consistently available to both the patient and his/her providers.
- Persona descriptions for patients with CKD and their provider care team members are available from the NIH site:
- Patient personas; this track's sample data are based on Betsy Johnson's persona
- Provider personas for six members of a CKD patient's care team
- A draft set of data elements and terminology codes are also available for CKD care management, created by the NIH CKD Care Plan Working Group
- Example FHIR resource data were created for testing, based on these CKD patient and provider personas and data elements
- JSON sample FHIR resource files for patient persona Betsy Johnson (contributions welcome!). See https://github.com/clinical-cloud/sample-data/chronic-conditions
- These sample data are also loaded into this track's HSPC sandbox FHIR server, https://api-stu3.hspconsortium.org/careplantest/open
Technical Scenarios
Retrieve a patient's care plan(s)
Search for a patient's care plans(s) and associated resources (Conditions, Goals, activity references, CareTeam)
- An end-user client application enables patients and/or care team members to search for and view care plans and their referenced resources.
- A server-based application queries a patient's care plans and other clinical resources
- e.g. a population health or analytics product vendor retrieves a patient's care plans and related resources for aggregation, analysis, and sharing with other care team members
Create new care plan from protocol definition
- Generate a CarePlan from a PlanDefinition protocol, customized using the current Patient's context
- Use PlanDefinition $apply operation
- Save the resulting CarePlan resource on a FHIR server, making it available to participants of the other track roles and scenarios
Request CDS 'patient-view' hook
- Invoke 'patient-view' hook on one or more CDS Hook service providers
- Display returned cards
- Cards may include any combination of information (for reading), suggested actions (to be applied if a user selects them), and links (to launch an app if the user selects them). The client application decides how to display cards, but CDS Hooks specification recommends displaying suggestions using buttons, and links using underlined text.
Example clinical scenarios for integrating CDS:
- Evaluate progress toward care plan goals
- Query and analyze relevant Observations related to a Goal target measure (e.g. blood glucose, weight, etc.)
- Return CDS Hook cards notifying care team members about lack of progress on goal targets
- Recommend additions to care plan activities based on current Patient status or revised diagnoses
- Return CDS Hook cards with information or suggestions based on clinical practice guidelines for chronic condition management
Outcomes
Summary
Effective care management includes active use of clinical practice guidelines and best practices that provide advice based on on evidence-based care, plus using these care protocols to create and share care plans among all members of a patient’s care team. This track emphasized integrating FHIR resources for PlanDefinition and CarePlan used to define protocols and create care plans, Business Process Modeling Notation (BPMN) standard to define clinical pathways, and FHIR PlanDefinition with Clinical Quality Language (CQL) to provide guidance at the point of care using CDS Hooks. Participants engaged in active coordination with Clinical Reasoning and CDS Hooks tracks.
Participants
- Allscripts
- Book Zurman
- Clinical Cloud Solutions
- InterSystems
- Motive Medical Intelligence
- Philips
- Veterans Health Administration (VHA)
Notable Achievements
- Continued work from January connectathon to develop sample FHIR resources that represent a realistic clinical scenario for a patient with Diabetes, Chronic Kidney Disease (CKD), and Congestive Heart Failure (CHF).
- All participants agreed that this realistically complex scenario provides a productive use case for analyzing and prototyping solutions for care planning and care management. This clinical use case is based on the NIH Chronic Kidney Disease (CKD) Care Plan project. Because frequent transitions of care are common among patients with CKD, an electronic CKD care plan could potentially improve patient outcomes by helping to ensure that critical patient data are consistently available to both the patient and his/her providers, and that care management is based on evidence-based clinical practice guidelines.
- We successfully connected FHIR care planning resources with clinical reasoning logic using the Clinical Quality Language (CQL) and CDS Hooks.
- The cqf-ruler open source server was used to develop a CDS Hooks service based on FHIR PlanDefintion and CQL to provide care management guidance for CKD a patient. CDS Hooks returns info cards with 2-year and 5-year kidney failure risk percentages, plus suggestion cards for ordering eGFR labs, referral to a nephrologist, or recommendation for Pneumococcal Immunization, as needed based on clinical practice guidelines.
Screenshots
Discovered issues
- Need to document required patterns for using FHIR PlanDefinition, ActivityDefinition, and CQL logic libraries to define CDS services for CDS Hooks.
Now What?
Track participants agreed that these activities must continue with active collaboration and delivery milestones prior to the next connectathon in September. Discussed potential for proposing a project within the Healthcare Services Platform Consortium (HSPC) to develop reference implementations and document implementation guidelines. We also agreed to organize a Care Management interest table at the June FHIR DevDays meeting.
