November 14, 2017 CBCP Conference Call

Community-Based Care and Privacy (CBCP) Working Group Meeting

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Meeting Information

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Attendees

	Member Name		x	Member Name		x	Member Name		x	Member Name
.	Johnathan ColemanCBCP Co-Chair		x	Suzanne Gonzales-Webb CBCP Co-Chair		x	Jim Kretz CBCP Co-Chair		x	David Pyke CBCP Co-Chair
x	Kathleen Connor Security Co-Chair		x	Mike Davis		x	John Moehrke Security Co-Chair		x	Diana Proud-Madruga SOA Co-Chair
.	Mohammed Jafari		.	Ali Khan		.	Ken Salyards		.	Ken Sinn
x	David Staggs		.	Steve Eichner		.	Ioana Singureanu		.	Beth Pumo
.	Chris Shawn		x	Neelima Chennamaraja		.	Joe Lamy		.	Joseph Quinn
.	Irina Connelly		x	David Staggs		.	Dave Silver		.

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Agenda

1. (05 min) Roll Call, Approve Agenda
   • Approve Meeting Minutes for November 7th call.
2. (05 min) CBCC FHIR THURSDAY call at 1:00 ET // FHIR Consent Directive Project Wiki, Main page
   • FHIR Consent discussion
   • FHIR Consent CPs are located: link to ALL Change requests
3. [PrivacyConsent] listerve - updates?
4. Behavioral Health special Interest Group (BH-SIG) - "Condition" FHIR resource discussion (Piper Ranallo)
   • FHIR Condition resource for DSM-5 disorders
5. (05 min) Security and Privacy Impact Assessment Cookbook (SPIA) - SUR definition - Suzanne
   • no update for 11/7; e-mail sent to Ann at HL7 office for update
6. Re-balloting of Security and Privacy Domain Analysis Information model - Mike Davis
7. Patient Choice Technical Project - Johnathan
8. September 2017 CBCC Working Group Meeting - San Diego, California USA, September 10-15, 2017 DRAFT MEETING MINUTES

• Suzanne chaired
• Agenda informally approved.

1. January 2018 CBCP Working Group Meeting - New Orleans, Louisiana USA, January xx-xx, 2018 DRAFT Agenda

Please contact a CBCC Co-chair if you wish to add agenda items! Thank you!

Minutes

• Suzanne chaired
• Agenda approved
• November 7th callapproved David Pyke moved to approve, David Staggs seconded. 9-0-0.
• RE Thursdays FHIR Consent call: David Pyke "we had a great meeting" reported on the Research Consent Directive Research Use Case. ONC Patient Choice developed research consent model in developing the FHIR consent model for research. Saurva, Kathleen, and Ali have discussed/will discuss further with another stakeholder and will bring back to group.
• David also discussed a Consent track led by Aaron Seib for the January Connectathon. The focus will be on OAUTH with a Consent Resource that will memorize the consent ceremony but this will not be required to be demonstrated by implementers. Kathleen stated that a second scenario is underway that is a follow-on from previous tract to show cascading OAuth and a FHIR consent directive. Aaron is corresponding with Kathleen. She and Mohammad Jafari will bring the proposed scenario forward using the template on the wiki.
• There are Research tracks in the FHIR connect. However, they have largely ignored consent; work is focused is what information needs to be exchanged; since is not in their scope but not a lot of interest. We will bug again in January 2018 to see if we can get them interested. Although we do not have a full model we do have a link between the Research Study and the Consent Resource.
• Looked at the Australian organ donation use case was brought forward on the FHIR chat Richard Tomley O'Neil. Since then has sent an extension, use cases, and a model. Discussed this at length and will bring forward on next Thursday's FHIR Consent call. However, we will likely leave as a national extension because it is not seen as core to the current FHIR Consent. Australia will do the work. David will post this material to gForge.
• Looked at the Australian organ donation use case was brought forward on the FHIR chat Richard Tomley O'Neil. Since then has sent an extension, use cases, and a model. Discussed this at length and will bring forward on next Thursday's FHIR Consent call. However, we will likely leave as a national extension because it is not seen as core to the current FHIR Consent. Australia will do the work. David will post this material to gForge.
• Started a discussion about Break the Glass (BTG) and restrictions. Looking for examples where BTG is not allowed. Not seeing a lot of jurisdictions that use this. How wide the concept that do not allow BTG – is it a major deal? Kathleen noted that Utah and British Columbia HIEs have such provisions.
• Mike asked whether we will let patients die. Kathleen said that these consent directives allow you to opt-out of break the glass in HIE. It doesn’t mean that they couldn’t break the glass within the hospital. It's only at the HIE level that a request for information on the patient for purposes of emergency. Might be seen as a hammer to get patients to opt in. David will check if there is already an example . John M says he pointed it to David already.
• Piper presented issues that the BH SIG has uncovered with the Condition Resource for use of DSM coding. David clarified how to use the Condition Resource data types to support DSM terminology. David will follow up with Piper on the details. Suggested that BH SIG take remaining issues to Patient Care to see if their use cases can be supported.
• Meeting adjourned at 1102 AZT.

/Meeting Minutes transcribed by Kathleen Connor with Suzanne's thanks.