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Difference between revisions of "Talk:Essential Information for Children with Special Healthcare Needs"

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(Created page with "Prior WG meetings on this topic have included: *Details re: Modeling *Nutritional Overview *Storyboard examples Agenda for 2/2/25: *provide greater detail for storyboard c...")
 
Line 9: Line 9:
 
Agenda for 2/2/25:
 
Agenda for 2/2/25:
 
*provide greater detail for storyboard cases
 
*provide greater detail for storyboard cases
 +
 +
Case 1:
 +
18 month old ex-25wk preterm infant with h/o bronchopulmonary dysplasia, complex device needs
 +
-ventilator dependent with tracheostomy
 +
-s/p Nissen and g-tube: gastric-tube feedings: pediasure  xxmL bolus q 4hour during day, continuous feeds 10 hours overnight
 +
presents to (non-primary) Emergency Department with fever & respiratory distress
 +
 +
-show care in medical home (capture details, preferences) --> how care plan is developed
 +
-show use in external/less familiar environments
 +
-mechanisms for updating information
 +
 +
Will need to determine potential source (e.g., location within EHR) for this information.
 +
 +
[Case 2:
 +
9 yr old with pervasive developmental disorder, feeding disorder, seizure disorder
 +
- has vomiting & diarrhea, dehydrated, worsening seizures]

Revision as of 22:47, 2 February 2015

Prior WG meetings on this topic have included:

  • Details re: Modeling
  • Nutritional Overview
  • Storyboard examples

Agenda for 2/2/25:

  • provide greater detail for storyboard cases

Case 1: 18 month old ex-25wk preterm infant with h/o bronchopulmonary dysplasia, complex device needs -ventilator dependent with tracheostomy -s/p Nissen and g-tube: gastric-tube feedings: pediasure xxmL bolus q 4hour during day, continuous feeds 10 hours overnight presents to (non-primary) Emergency Department with fever & respiratory distress

-show care in medical home (capture details, preferences) --> how care plan is developed -show use in external/less familiar environments -mechanisms for updating information

Will need to determine potential source (e.g., location within EHR) for this information.

[Case 2: 9 yr old with pervasive developmental disorder, feeding disorder, seizure disorder - has vomiting & diarrhea, dehydrated, worsening seizures]