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Difference between revisions of "Talk:Essential Information for Children with Special Healthcare Needs"
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| Line 12: | Line 12: | ||
Case 1: | Case 1: | ||
18 month old ex-25wk preterm infant with h/o bronchopulmonary dysplasia, complex device needs | 18 month old ex-25wk preterm infant with h/o bronchopulmonary dysplasia, complex device needs | ||
| − | + | *ventilator dependent with tracheostomy | |
| − | + | *s/p Nissen and g-tube: gastric-tube feedings: pediasure xxmL bolus q 4hour during day, continuous feeds 10 hours overnight | |
presents to (non-primary) Emergency Department with fever & respiratory distress | presents to (non-primary) Emergency Department with fever & respiratory distress | ||
| − | + | *detail device characteristics | |
| Line 25: | Line 25: | ||
Will need to determine potential source (e.g., location within EHR) for this information. | Will need to determine potential source (e.g., location within EHR) for this information. | ||
| − | + | Case 2: | |
| − | 9 yr old with pervasive developmental | + | 9 yr old with pervasive developmental disorder, seizure disorder, food aversion, struggles with weight gain |
| − | + | *capture food preference (textures) for patient in record -- at primary provider appointment | |
| − | -contingency plan (i.e., if seizures, consider increasing phenobarbital dose…. | + | *show review of preference in Emergency Department (or at Camp or in School) |
| + | *contingency plan (i.e., if seizures, consider increasing phenobarbital dose…. may give load IV or enterally) | ||
Revision as of 22:26, 16 February 2015
Prior WG meetings on this topic have included:
- Details re: Modeling
- Nutritional Overview
- Storyboard examples
Agenda for 2/2/25:
- provide greater detail for storyboard cases
Case 1: 18 month old ex-25wk preterm infant with h/o bronchopulmonary dysplasia, complex device needs
- ventilator dependent with tracheostomy
- s/p Nissen and g-tube: gastric-tube feedings: pediasure xxmL bolus q 4hour during day, continuous feeds 10 hours overnight
presents to (non-primary) Emergency Department with fever & respiratory distress
- detail device characteristics
-show care in medical home (capture details, preferences) --> how care plan is developed
-show use in external/less familiar environments
-mechanisms for updating information
(any opportunity for parental input… need to follow other examples of inclusion of patient/family input)
Will need to determine potential source (e.g., location within EHR) for this information.
Case 2: 9 yr old with pervasive developmental disorder, seizure disorder, food aversion, struggles with weight gain
- capture food preference (textures) for patient in record -- at primary provider appointment
- show review of preference in Emergency Department (or at Camp or in School)
- contingency plan (i.e., if seizures, consider increasing phenobarbital dose…. may give load IV or enterally)
