Difference between revisions of "Talk:Essential Information for Children with Special Healthcare Needs"
| Line 15: | Line 15: | ||
-s/p Nissen and g-tube: gastric-tube feedings: pediasure xxmL bolus q 4hour during day, continuous feeds 10 hours overnight | -s/p Nissen and g-tube: gastric-tube feedings: pediasure xxmL bolus q 4hour during day, continuous feeds 10 hours overnight | ||
presents to (non-primary) Emergency Department with fever & respiratory distress | presents to (non-primary) Emergency Department with fever & respiratory distress | ||
| + | -detail device characteristics | ||
| + | |||
-show care in medical home (capture details, preferences) --> how care plan is developed | -show care in medical home (capture details, preferences) --> how care plan is developed | ||
-show use in external/less familiar environments | -show use in external/less familiar environments | ||
-mechanisms for updating information | -mechanisms for updating information | ||
| + | (any opportunity for parental input… need to follow other examples of inclusion of patient/family input) | ||
Will need to determine potential source (e.g., location within EHR) for this information. | Will need to determine potential source (e.g., location within EHR) for this information. | ||
| Line 25: | Line 28: | ||
9 yr old with pervasive developmental disorder, feeding disorder, seizure disorder | 9 yr old with pervasive developmental disorder, feeding disorder, seizure disorder | ||
- has vomiting & diarrhea, dehydrated, worsening seizures] | - has vomiting & diarrhea, dehydrated, worsening seizures] | ||
| + | -contingency plan (i.e., if seizures, consider increasing phenobarbital dose…., may give load IV or enterally) | ||
Revision as of 22:00, 16 February 2015
Prior WG meetings on this topic have included:
- Details re: Modeling
- Nutritional Overview
- Storyboard examples
Agenda for 2/2/25:
- provide greater detail for storyboard cases
Case 1: 18 month old ex-25wk preterm infant with h/o bronchopulmonary dysplasia, complex device needs -ventilator dependent with tracheostomy -s/p Nissen and g-tube: gastric-tube feedings: pediasure xxmL bolus q 4hour during day, continuous feeds 10 hours overnight presents to (non-primary) Emergency Department with fever & respiratory distress -detail device characteristics
-show care in medical home (capture details, preferences) --> how care plan is developed
-show use in external/less familiar environments
-mechanisms for updating information
(any opportunity for parental input… need to follow other examples of inclusion of patient/family input)
Will need to determine potential source (e.g., location within EHR) for this information.
[Case 2: 9 yr old with pervasive developmental disorder, feeding disorder, seizure disorder - has vomiting & diarrhea, dehydrated, worsening seizures] -contingency plan (i.e., if seizures, consider increasing phenobarbital dose…., may give load IV or enterally)
