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Difference between revisions of "Talk:Essential Information for Children with Special Healthcare Needs"

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-s/p Nissen and g-tube: gastric-tube feedings: pediasure  xxmL bolus q 4hour during day, continuous feeds 10 hours overnight
 
-s/p Nissen and g-tube: gastric-tube feedings: pediasure  xxmL bolus q 4hour during day, continuous feeds 10 hours overnight
 
presents to (non-primary) Emergency Department with fever & respiratory distress
 
presents to (non-primary) Emergency Department with fever & respiratory distress
 +
-detail device characteristics
 +
  
 
-show care in medical home (capture details, preferences) --> how care plan is developed
 
-show care in medical home (capture details, preferences) --> how care plan is developed
 
-show use in external/less familiar environments
 
-show use in external/less familiar environments
 
-mechanisms for updating information
 
-mechanisms for updating information
 +
(any opportunity for parental input… need to follow other examples of inclusion of patient/family input)
  
 
Will need to determine potential source (e.g., location within EHR) for this information.
 
Will need to determine potential source (e.g., location within EHR) for this information.
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9 yr old with pervasive developmental disorder, feeding disorder, seizure disorder
 
9 yr old with pervasive developmental disorder, feeding disorder, seizure disorder
 
- has vomiting & diarrhea, dehydrated, worsening seizures]
 
- has vomiting & diarrhea, dehydrated, worsening seizures]
 +
-contingency plan (i.e., if seizures, consider increasing phenobarbital dose…., may give load IV or enterally)

Revision as of 22:00, 16 February 2015

Prior WG meetings on this topic have included:

  • Details re: Modeling
  • Nutritional Overview
  • Storyboard examples

Agenda for 2/2/25:

  • provide greater detail for storyboard cases

Case 1: 18 month old ex-25wk preterm infant with h/o bronchopulmonary dysplasia, complex device needs -ventilator dependent with tracheostomy -s/p Nissen and g-tube: gastric-tube feedings: pediasure xxmL bolus q 4hour during day, continuous feeds 10 hours overnight presents to (non-primary) Emergency Department with fever & respiratory distress -detail device characteristics


-show care in medical home (capture details, preferences) --> how care plan is developed -show use in external/less familiar environments -mechanisms for updating information

(any opportunity for parental input… need to follow other examples of inclusion of patient/family input)

Will need to determine potential source (e.g., location within EHR) for this information.

[Case 2: 9 yr old with pervasive developmental disorder, feeding disorder, seizure disorder - has vomiting & diarrhea, dehydrated, worsening seizures] -contingency plan (i.e., if seizures, consider increasing phenobarbital dose…., may give load IV or enterally)