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Difference between revisions of "Talk:Essential Information for Children with Special Healthcare Needs"

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Line 11: Line 11:
  
 
Case 1:
 
Case 1:
10 month old ex-25wk preterm infant with h/o bronchopulmonary dysplasia, complex device needs
+
18 month old ex-25wk preterm infant with h/o bronchopulmonary dysplasia, complex device needs
 
*ventilator dependent with tracheostomy  
 
*ventilator dependent with tracheostomy  
 
*s/p Nissen and g-tube: gastric-tube feedings: pediasure  xxmL bolus q 4hour during day, continuous feeds 10 hours overnight
 
*s/p Nissen and g-tube: gastric-tube feedings: pediasure  xxmL bolus q 4hour during day, continuous feeds 10 hours overnight
 
presents to (non-primary) Emergency Department with fever & respiratory distress
 
presents to (non-primary) Emergency Department with fever & respiratory distress
 
*detail device characteristics
 
*detail device characteristics
 
  
 
-show care in medical home (capture details, preferences) --> how care plan is developed
 
-show care in medical home (capture details, preferences) --> how care plan is developed
Line 28: Line 27:
 
9 yr old with pervasive developmental disorder, seizure disorder, food aversion, struggles with weight gain
 
9 yr old with pervasive developmental disorder, seizure disorder, food aversion, struggles with weight gain
 
*capture food preference (textures) for patient in record -- at primary provider appointment
 
*capture food preference (textures) for patient in record -- at primary provider appointment
*show review of preference in Emergency Department  (or at Camp or in School)
+
*show review of preference in at Camp or in School
 
*contingency plan (i.e., if seizures, consider increasing phenobarbital dose…. may give load IV or enterally)
 
*contingency plan (i.e., if seizures, consider increasing phenobarbital dose…. may give load IV or enterally)
 +
 +
*Pre-camp visit
 +
*-review of food preferences
 +
*-medication and problem list review
 +
*-contingency plan
 +
*Form review
 +
*-render in browser
 +
*-render in printed format
 +
*Presenting with seizures in new setting (TBD)
 +
 +
Case 3:
 +
Transition among providers.
 +
 +
 +
 +
----
 +
Recent notes:
 +
 +
*reviewed project to date
 +
*discussed rough drafts of existing story boards (including Emergency Care)
 +
*high-level review Care Plan Logical Model (Stephen Chu)
 +
*discussed aiming to use existing models (Enrique to facilitate)
 +
*transition among providers model in development (Pallavi - lead)
 +
*communication preferences
 +
*dietary preferences (Carolyn)
 +
 +
-------
 +
 +
**Will highlight key features in the document - including priority level (discuss with Gay)

Latest revision as of 21:03, 8 June 2015

Prior WG meetings on this topic have included:

  • Details re: Modeling
  • Nutritional Overview
  • Storyboard examples

Agenda for 2/2/25:

  • provide greater detail for storyboard cases

Case 1: 18 month old ex-25wk preterm infant with h/o bronchopulmonary dysplasia, complex device needs

  • ventilator dependent with tracheostomy
  • s/p Nissen and g-tube: gastric-tube feedings: pediasure xxmL bolus q 4hour during day, continuous feeds 10 hours overnight

presents to (non-primary) Emergency Department with fever & respiratory distress

  • detail device characteristics

-show care in medical home (capture details, preferences) --> how care plan is developed -show use in external/less familiar environments -mechanisms for updating information

(any opportunity for parental input… need to follow other examples of inclusion of patient/family input)

Will need to determine potential source (e.g., location within EHR) for this information.

Case 2: 9 yr old with pervasive developmental disorder, seizure disorder, food aversion, struggles with weight gain

  • capture food preference (textures) for patient in record -- at primary provider appointment
  • show review of preference in at Camp or in School
  • contingency plan (i.e., if seizures, consider increasing phenobarbital dose…. may give load IV or enterally)
  • Pre-camp visit
  • -review of food preferences
  • -medication and problem list review
  • -contingency plan
  • Form review
  • -render in browser
  • -render in printed format
  • Presenting with seizures in new setting (TBD)

Case 3: Transition among providers.



Recent notes:

  • reviewed project to date
  • discussed rough drafts of existing story boards (including Emergency Care)
  • high-level review Care Plan Logical Model (Stephen Chu)
  • discussed aiming to use existing models (Enrique to facilitate)
  • transition among providers model in development (Pallavi - lead)
  • communication preferences
  • dietary preferences (Carolyn)

    • Will highlight key features in the document - including priority level (discuss with Gay)