This wiki has undergone a migration to Confluence found Here
Difference between revisions of "Talk:Essential Information for Children with Special Healthcare Needs"
Jump to navigation
Jump to search
(Created page with "Prior WG meetings on this topic have included: *Details re: Modeling *Nutritional Overview *Storyboard examples Agenda for 2/2/25: *provide greater detail for storyboard c...") |
|||
| (13 intermediate revisions by the same user not shown) | |||
| Line 9: | Line 9: | ||
Agenda for 2/2/25: | Agenda for 2/2/25: | ||
*provide greater detail for storyboard cases | *provide greater detail for storyboard cases | ||
| + | |||
| + | Case 1: | ||
| + | 18 month old ex-25wk preterm infant with h/o bronchopulmonary dysplasia, complex device needs | ||
| + | *ventilator dependent with tracheostomy | ||
| + | *s/p Nissen and g-tube: gastric-tube feedings: pediasure xxmL bolus q 4hour during day, continuous feeds 10 hours overnight | ||
| + | presents to (non-primary) Emergency Department with fever & respiratory distress | ||
| + | *detail device characteristics | ||
| + | |||
| + | -show care in medical home (capture details, preferences) --> how care plan is developed | ||
| + | -show use in external/less familiar environments | ||
| + | -mechanisms for updating information | ||
| + | (any opportunity for parental input… need to follow other examples of inclusion of patient/family input) | ||
| + | |||
| + | Will need to determine potential source (e.g., location within EHR) for this information. | ||
| + | |||
| + | Case 2: | ||
| + | 9 yr old with pervasive developmental disorder, seizure disorder, food aversion, struggles with weight gain | ||
| + | *capture food preference (textures) for patient in record -- at primary provider appointment | ||
| + | *show review of preference in at Camp or in School | ||
| + | *contingency plan (i.e., if seizures, consider increasing phenobarbital dose…. may give load IV or enterally) | ||
| + | |||
| + | *Pre-camp visit | ||
| + | *-review of food preferences | ||
| + | *-medication and problem list review | ||
| + | *-contingency plan | ||
| + | *Form review | ||
| + | *-render in browser | ||
| + | *-render in printed format | ||
| + | *Presenting with seizures in new setting (TBD) | ||
| + | |||
| + | Case 3: | ||
| + | Transition among providers. | ||
| + | |||
| + | |||
| + | |||
| + | ---- | ||
| + | Recent notes: | ||
| + | |||
| + | *reviewed project to date | ||
| + | *discussed rough drafts of existing story boards (including Emergency Care) | ||
| + | *high-level review Care Plan Logical Model (Stephen Chu) | ||
| + | *discussed aiming to use existing models (Enrique to facilitate) | ||
| + | *transition among providers model in development (Pallavi - lead) | ||
| + | *communication preferences | ||
| + | *dietary preferences (Carolyn) | ||
| + | |||
| + | ------- | ||
| + | |||
| + | **Will highlight key features in the document - including priority level (discuss with Gay) | ||
Latest revision as of 21:03, 8 June 2015
Prior WG meetings on this topic have included:
- Details re: Modeling
- Nutritional Overview
- Storyboard examples
Agenda for 2/2/25:
- provide greater detail for storyboard cases
Case 1: 18 month old ex-25wk preterm infant with h/o bronchopulmonary dysplasia, complex device needs
- ventilator dependent with tracheostomy
- s/p Nissen and g-tube: gastric-tube feedings: pediasure xxmL bolus q 4hour during day, continuous feeds 10 hours overnight
presents to (non-primary) Emergency Department with fever & respiratory distress
- detail device characteristics
-show care in medical home (capture details, preferences) --> how care plan is developed -show use in external/less familiar environments -mechanisms for updating information
(any opportunity for parental input… need to follow other examples of inclusion of patient/family input)
Will need to determine potential source (e.g., location within EHR) for this information.
Case 2: 9 yr old with pervasive developmental disorder, seizure disorder, food aversion, struggles with weight gain
- capture food preference (textures) for patient in record -- at primary provider appointment
- show review of preference in at Camp or in School
- contingency plan (i.e., if seizures, consider increasing phenobarbital dose…. may give load IV or enterally)
- Pre-camp visit
- -review of food preferences
- -medication and problem list review
- -contingency plan
- Form review
- -render in browser
- -render in printed format
- Presenting with seizures in new setting (TBD)
Case 3: Transition among providers.
Recent notes:
- reviewed project to date
- discussed rough drafts of existing story boards (including Emergency Care)
- high-level review Care Plan Logical Model (Stephen Chu)
- discussed aiming to use existing models (Enrique to facilitate)
- transition among providers model in development (Pallavi - lead)
- communication preferences
- dietary preferences (Carolyn)
- Will highlight key features in the document - including priority level (discuss with Gay)
