Personal Advance Care Plan Document

CDA R2.1 Project

Welcome to the Personal Advance Care Plan Project Wiki Site. On these pages we will manage the information necessary to support development of CDA R2 Implementation Guide that specifies how to create a patient generated document with content that expresses an individual's advance care plan, a plan that is made in advance of when it may be needed in order to document a person's care goals, preferences, and priorities, the person's appointed healthcare agents, organ donation preferences, final arrangements, and other such directives.

• How do we limit significant changes in CDA R2.1?
  • Guiding principles used to manage the project, encourage collaboration, and limit the scope of the content to be included.
    
    • The PSS sets the scope and boundaries for the project
    • Content requirements will be limited to follow actual examples readily in the United States, available on the internet,and considered to be a reputable reference resource by the steering committee
    • All samples will be considered but the steering committee will narrow the focus to include the top five examples
    • Decision making over controversial topics will be delayed as long as is feasible for the project
      • Options will be developed using in a collaborative approach
      • Input will be sought from Patient Care (Co-sponsor)
      • Final decisions will be governed through Structured Documents (Project Sponsor)
    • Expression of goals, preferences and priorities will be formulated as standard questions, but responses will not be limited to specific coded answers. The objective is to allow a person to answer a "known" question in what ever way fits their intention. Questions shall be structured, answers may be standardized but don't have to be. This specification will not constrain the vocabulary associated with a person's answers.

Project Information

• Project Listservs: strucdoc@lists.hl7.org patientcare@lists.hl7.org

• Project Scope Statement (as of 9/2/2015): http://www.hl7.org/documentcenter/public/wg/structure/PSS_StrucDocs_IG_for_CDA_R2_ACP_R1_2015%20v20150901.docx

Meeting Times

Current Agenda

Conference Calls Technical Team conference call Meets every Tuesday at 3:00 PM Eastern Time for 1 hour. Participation Information Phone Number: +1 (770) 657-9270 Participant Passcode: 310940 Web Meeting Info Join a Meeting Lisa Nelson to Host Steering Committee conference call Once a month on Tuesdays at 5:00 PM Eastern Time for 1 hour. September 15, 2015 Participation Information GoTo Meeting Conf#: +1 (224) 501-3412 Access Code: 227-809-629 Web Meeting Info Join a Meeting Lisa Nelson to Host

Agenda Items Current Agenda - Technical Team Project Guiding Principles Requirements Analysis and Documentation Source documents Volume 1 Content Outline Current Agenda - Steering Committee Steering Committee Introductions Role of the steering committee Project Overview Goal, purpose, tasks and timeline Project Use Case review Project Name Discussion Functional Requirements Vocabulary Discussion Open discussion of other guiding considerations for the project HL7 process  - optional participation for non-members (not required, but possible)

Past Minutes

• 2015 09 15 Minutes - CDA Personal ACP Project

Open Issues

Open Issues (Last updated 9/2)

ISSUE #	Date Entered	Summary of Issue	Existing Positions	Proposed Options	Comments
101	2015-08-15	Project title needs to be finalized	Many different points of view exist regarding the ideal title for this project Some feel the title needs to be short to be manageable while other would prefer a longer and more descriptive name Some feel the words "advance care plan" are misleading because they do not see the association to "Care Plan" documents. Others would prefer to see the words "Goals, Preference, and Priorities" in the title. Some feel the word "Patient" or the words "Patient Generated" would help to clarify that this document is a type of patient generated document. Others prefer the term "patient" not be used because individuals may create an advance care document when they are not sick and not a "patient". They argue the term "patient" is too limiting. Significant discussions on the SDWG listserve regarding the use of the word "patient" or "person" or "individual". Keith Boone has started a survey to ask for feedback. (Posted on Motorcycle Guy blog 2015-09-02)	The project title will be reviewed with the steering committee and this issue will remain open as additional feedback is sought.	The present "working title" will be used until an option is developed that carries consensus support

Reference Resources

Resource (Last updated 9/8)

ITEM #	Date Added	Resource Title	Description	Link
01	2015-09-08	The Commission on Law and Aging, American Bar Association. Giving Someone a Power of Attorney For Your Health Care: A Guide with an Easy-to-Use, Legal Form for All Adults		Add LINK HERE
02	2015-09-08			Add LINK HERE
03	2015-09-08			Add LINK HERE
04	2015-09-08			Add LINK HERE
05	2015-09-08			Add LINK HERE
nn	2015-09-08	Adams Living Will & Power of Attorney for Health Care Kit. Copyright 2009, TOPS Downers Grove IL 60515. Provided under license from the copyright holder, Nova Publishing Co	A resource I found at Staples which helps people make their own health care wished know, control the care they receive, and ensure death with dignity if you become incapacitated.	Available from www.tops-products.com