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Essential Information for Children with Special Healthcare Needs

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Revision as of 22:56, 2 February 2015 by Michael padula (talk | contribs)
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[Child Health Work Group Wiki][1]

This page is for documents related to the Essential Information for Children with Special Healthcare Needs project.


Project Conference Calls: The calls fall every 2 weeks beginning at 5pm ET on Monday Feb 2, 2015


Storyboards

A storyboard explains the series of actions in a particular scenario as an example that highlights relevant content.

Potential storyboards to include aspects of the the following examples

  • Presenting to a new healthcare provider
    • Presenting to an Emergency Department
    • School
    • Referral to new subspecialty provider
    • Transitioning between primary care providers
  • Contingent Care Plan
    • Pumping ventriculoperitoneal shunt
    • Seizure onset
    • Sickle cell crisis
    • Respiratory distress due to airway obstruction/secretions
    • Critical/difficult airway for intubation
    • Congestive heart failure
  • Nutrition
    • Complex enteral feeding regimens
    • Parenteral nutrition
    • Dietary preferences/restrictions
  • Special device needs
    • hearing aids
    • tracheostomy/ventilators
    • feeding tubes
      • nasogastric/orogastric tubes
      • gastric tubes/buttons
      • GJ tubes
    • feeding pumps
    • nebulizer
    • apnea monitors
    • ostomy care
    • wound care
    • drain care
    • central venous access


  • Communication
    • Identifying needs of non-verbal patients
    • Indications of pain, comfort, happiness
  • Patient/Parental Preferences
  • Contraindicated procedures (and rationale)
    • No BP cuff on extremity
    • No vascular access (e.g., due to venous clot)
  • Problems/Diagnoses
  • Procedures/Surgeries

Sections/Templates

  • Demographics
  • Provider Contacts

Reference Documents for Similar Content:

Emergency Preparedness for Children with Special Health Care Needs [2] [3]

CMS Form 485 [4]

Storyboard Development http://wiki.hl7.org/index.php?title=File:CHWG_storyboards.docx