Essential Information for Children with Special Healthcare Needs

[Child Health Work Group Wiki][1]

This page is for documents related to the Essential Information for Children with Special Healthcare Needs project.

• The Project Scope Statement in Project insight: Project Summary for Essential Information for Children with Special Health Care Needs

Storyboards

(use cases/examples)

• Presenting to a new healthcare provider
  • Presenting to an Emergency Department
  • School/Camp
  • Referral to new subspecialty provider
  • Transitioning between primary care providers

• Contingent Care Plan
  • Pumping ventriculoperitoneal shunt
  • Seizure onset
  • Sickle cell crisis
  • Respiratory distress due to airway obstruction/secretions
  • Critical/difficult airway for intubation
  • Congestive heart failure

• Nutrition
  • Complex enteral feeding regimens
  • Parenteral nutrition
  • Dietary preferences/restrictions

• Special device needs
  • tracheostomy/ventilators
  • feeding tubes
    • nasogastric/orogastric tubes
    • gastric tubes/buttons
    • GJ tubes
  • feeding pumps
  • nebulizer
  • apnea monitors
  • ostomy care
  • wound care
  • drain care
  • central venous access

• Communication
  • Identifying needs of non-verbal patients
  • Indications of pain, comfort, happiness

• Patient/Parental Preferences

• Contraindicated procedures (and rationale)
  • No BP cuff on extremity
  • No vascular access (e.g., due to venous clot)

Project Conference Calls: The calls fall at 3pm ET on Monday Dec 1 and Dec 15. Reminders with webex and phone information will follow

Reference Documents for Similar Content:

Emergency Preparedness for Children with Special Health Care Needs [2] [3]

CMS Form 485 [4]

Storyboard Development http://wiki.hl7.org/index.php?title=File:CHWG_storyboards.docx