Essential Information for Children with Special Healthcare Needs

Child Health Work Group Wiki

This page is for documents related to the Essential Information for Children with Special Healthcare Needs project.

• The Project Scope Statement in Project insight: Project Summary for Essential Information for Children with Special Health Care Needs

Project Conference Calls: The calls fall every 2 weeks beginning at 4pm ET. Next Monday Apri 27, 2015

Storyboards

A storyboard explains the series of actions in a particular scenario as an example that highlights relevant content.

Potential storyboards to include aspects of the the following examples

• Presenting to a new healthcare provider
  • Presenting to an Emergency Department
  • Referral to new subspecialty provider
  • Transitioning between primary care providers
  • School
  • Summer camp

• Contingent Care Plan
  • Pumping ventriculoperitoneal shunt
  • Seizure onset
  • Sickle cell crisis
  • Respiratory distress due to airway obstruction/secretions
  • Critical/difficult airway for intubation
  • Congestive heart failure

• Nutrition
  • Complex enteral feeding regimens
  • Parenteral nutrition
  • Dietary preferences/restrictions

• Special device needs
  • hearing aids
  • tracheostomy/ventilators
  • feeding tubes
    • nasogastric/orogastric tubes
    • gastric tubes/buttons
    • GJ tubes
  • feeding pumps
  • nebulizer
  • apnea monitors
  • ostomy care
  • wound care
  • drain care
  • central venous access

• Communication
  • Identifying needs of non-verbal patients
  • Indications of pain, comfort, happiness

• Patient/Parental Preferences
  • food preferences

• Contraindicated procedures (and rationale)
  • No BP cuff on extremity
  • No vascular access (e.g., due to venous clot)

• Problems/Diagnoses

• Procedures/Surgeries

• Current Story Boards in Progress:
  • Transitions of Care

Sections/Templates

• Demographics
• Provider Contacts
  • Provider Name, (sub)specialty, Phone, Fax, Email
• Problem List (Diagnoses)
• Baseline Exam and Vital Signs (include?)
• Procedures/Surgical History

• Contraindications
  • Allergies
  • Foods to be avoided (and rationale)
  • Procedures to be avoided (and rationale)

• Immunizations

• Medications

• Contingency Plan

• Care Plan

Care Plan Logical Information Model

Reference Documents for Similar Content:

Emergency Preparedness for Children with Special Health Care Needs [1] [2]

CMS Form 485

Storyboard Development

Questions:

Please contact

• Michael Padula padula@email.chop.edu
• Russ Leftwitch rleft@pobox.com