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Difference between revisions of "Essential Information for Children with Special Healthcare Needs"

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This page is for documents related to the '''Essential Information for Children with Special Healthcare Needs''' project.
 
This page is for documents related to the '''Essential Information for Children with Special Healthcare Needs''' project.
 
*The Project Scope Statement in Project insight: [http://www.hl7.org/special/Committees/projman/searchableProjectIndex.cfm?action=edit&ProjectNumber=1111 Project Summary for Essential Information for Children with Special Health Care Needs]
 
*The Project Scope Statement in Project insight: [http://www.hl7.org/special/Committees/projman/searchableProjectIndex.cfm?action=edit&ProjectNumber=1111 Project Summary for Essential Information for Children with Special Health Care Needs]
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Project Conference Calls:
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The calls fall every 2 weeks beginning at 5pm ET on Monday Feb 2, 2015
  
  
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Project Conference Calls:
 
The calls fall at 3pm ET on Monday Dec 1 and Dec 15. Reminders with webex and phone information will follow
 
  
 
== Reference Documents for Similar Content: ==
 
== Reference Documents for Similar Content: ==

Revision as of 22:36, 20 January 2015

[Child Health Work Group Wiki][1]

This page is for documents related to the Essential Information for Children with Special Healthcare Needs project.


Project Conference Calls: The calls fall every 2 weeks beginning at 5pm ET on Monday Feb 2, 2015


Storyboards

(use cases/examples)


  • Presenting to a new healthcare provider
    • Presenting to an Emergency Department
    • School/Camp
    • Referral to new subspecialty provider
    • Transitioning between primary care providers
  • Contingent Care Plan
    • Pumping ventriculoperitoneal shunt
    • Seizure onset
    • Sickle cell crisis
    • Respiratory distress due to airway obstruction/secretions
    • Critical/difficult airway for intubation
    • Congestive heart failure
  • Nutrition
    • Complex enteral feeding regimens
    • Parenteral nutrition
    • Dietary preferences/restrictions
  • Special device needs
    • hearing aids
    • tracheostomy/ventilators
    • feeding tubes
      • nasogastric/orogastric tubes
      • gastric tubes/buttons
      • GJ tubes
    • feeding pumps
    • nebulizer
    • apnea monitors
    • ostomy care
    • wound care
    • drain care
    • central venous access


  • Communication
    • Identifying needs of non-verbal patients
    • Indications of pain, comfort, happiness
  • Patient/Parental Preferences
  • Contraindicated procedures (and rationale)
    • No BP cuff on extremity
    • No vascular access (e.g., due to venous clot)
  • Problems/Diagnoses
  • Procedures/Surgeries


Reference Documents for Similar Content:

Emergency Preparedness for Children with Special Health Care Needs [2] [3]

CMS Form 485 [4]

Storyboard Development http://wiki.hl7.org/index.php?title=File:CHWG_storyboards.docx