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201801 Bulk Data

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Track Name

Bulk Data Access

Submitting WG/Project/Implementer Group

FHIR-I

Justification

This track is created at the request of the ONC. ONC provided this justification:

  • Ecosystem outcome expected to enable many specific use case/business needs: Providers and organizations accountable for managing the health of populations can efficiently access to large volumes of informationon a specified group of individuals without having to access one record at a time. This population-level access would enable these stakeholders to: assess the value of the care provided, conduct population analyses, identify at-risk populations, and track progress on quality improvement.
  • Technical Expectations: There would be a standardized method built into the FHIR standard to support access to and transfer of a large amount of data on a specified group of patients and that such method could be reused for any number of specific business purposes.
  • Policy Expectations: All existing legal requirements for accessing identifiable patient information via other bulk methods (e.g., ETL) used today would continue to apply (e.g., through HIPAA BAAs/contracts, Data Use Agreements, etc).

Proposed Track Lead

Dan Gottleib with support from Grahame Grieve (Connectathon_Track_Lead_Responsibilities)

Expected participants

  • Grahame Grieve
  • Cerner
  • Epic
  • CARIN health alliance

Roles

Data Provider: provides data in the manner specified by the bulk data API Data Consumer: consumes data in the manner specified by the bulk data API and displays/processes the data


Scenarios

The bulk data track is divided into 3 scenarios:

  1. asynchronous access
  2. nd-json support
  3. smart back-end services

Participants are encouraged to support either of the following initiation points:

  • GET [base]/Patient/[id]/$everything
  • GET [base]/Patient/$everything

However for the purposes of this connectathon track, data providers can nominate any other URL to initiate the process, as long as it returns a FHIR Bundle

Scenario Step 1: Asynchronous Access

Action:
Precondition: Use the nominated URL for the
Success Criteria:
Bonus point:


TestScript(s)

Security and Privacy Considerations