Essential Information for Children with Special Healthcare Needs

[Child Health Work Group Wiki][1]

This page is for documents related to the Essential Information for Children with Special Healthcare Needs project.

• The Project Scope Statement in Project insight: Project Summary for Essential Information for Children with Special Health Care Needs

Project Conference Calls: The calls fall every 2 weeks beginning at 5pm ET on Monday Feb 2, 2015

Storyboards

A storyboard explains the series of actions in a particular scenario. 

Its primary purpose is to identify the various scenarios. Each storyboard is represented as sequence diagrams. It also lists the interactions between two or more systems playing different Application Roles. Potential storyboards to include aspects of the the following examples

• Presenting to a new healthcare provider
  • Presenting to an Emergency Department
  • School
  • Referral to new subspecialty provider
  • Transitioning between primary care providers

• Contingent Care Plan
  • Pumping ventriculoperitoneal shunt
  • Seizure onset
  • Sickle cell crisis
  • Respiratory distress due to airway obstruction/secretions
  • Critical/difficult airway for intubation
  • Congestive heart failure

• Nutrition
  • Complex enteral feeding regimens
  • Parenteral nutrition
  • Dietary preferences/restrictions

• Special device needs
  • hearing aids
  • tracheostomy/ventilators
  • feeding tubes
    • nasogastric/orogastric tubes
    • gastric tubes/buttons
    • GJ tubes
  • feeding pumps
  • nebulizer
  • apnea monitors
  • ostomy care
  • wound care
  • drain care
  • central venous access

• Communication
  • Identifying needs of non-verbal patients
  • Indications of pain, comfort, happiness

• Patient/Parental Preferences

• Contraindicated procedures (and rationale)
  • No BP cuff on extremity
  • No vascular access (e.g., due to venous clot)

• Problems/Diagnoses

• Procedures/Surgeries

Reference Documents for Similar Content:

Emergency Preparedness for Children with Special Health Care Needs [2] [3]

CMS Form 485 [4]

Storyboard Development http://wiki.hl7.org/index.php?title=File:CHWG_storyboards.docx