NBS Profile for LRI guide (Lab US Realm)
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Sponsoring WG: Orders and Observations [1]
Project co-sponsors: Public Health Emergency and Response [2]
Project Information
Link to Project Insight Searchable Database
- Brief description of project:
The purpose of this project is to complete and ballot the specification for exchanging a standardized NBS DBS laboratory result (based on the 2011 Public Health Informatics Institute (PHII) Newborn Screening (NBS) Dried Blood Spot (DBS) implementation guide utilizing the HL7 Version 2.5.1 ORU^R01 message) updated to the LRI Framework. This message will send all electronic NBS DBS laboratory test results from the laboratory that conducted the testing to the results receiver. The results receiver may be inclusive of the primary care physician, birthing hospital, public health agency, medical specialist, health information exchange, or vital records department.
This implementation guide will also provide recommendations on vocabulary standards and on types of identifiers to capture, which HL7 fields those identifiers are mapped to, and the specific identifiers that may be used.
- Name the project facilitators:
Riki Merrick (APHL) - riki.merrick@aphl.org
Rebecca Goodwin (NLM) - goodwinrm@mail.nlm.nih.gov
Rob Hausam (Hausam Consulting) - rrhausam@gmail.com
- Name the project listserv if a special one exists
Meeting Information
- link to or list project meeting schedule
- Meeting agendas and minutes:
Status
- In development, link to in progress
- If balloting, list ballot name/cycle/link
- If in DSTU, link to DSTU comments page
Project Documents
- Working documents:
- Link to U.S. National Library of Medicine HL7 Guidance Newborn Screening LOINC Panel and Example HL7 Result Message
- Link to Newborn Screening LOINC Panel Comprehensive Detailed Version (with Answer Lists)
- Link to Public Health Informatics Institute (PHII) Newborn Dried Blood Spot (NDBS) Screening Implementation Guide for Laboratory Results
- Link to project GForge
- Link to reference documentation on GForge, HL7 Web site WG Documents/Presentations page, or external web pages
