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==Organization Consent Directive Law== | ==Organization Consent Directive Law== | ||
| + | ==Consent Directive Use Cases and Strawcritters== | ||
| + | *[[iDASH - integrating data for analysis, anonymization, and sharing]] | ||
| + | *[[Apple ResearchKit Consent Document]] | ||
| + | *[[Kathleen's strawcritter for how FHIR ConsentDirective profile could support Ioana's list of requirements.]] | ||
| + | *[http://wiki.hl7.org/index.php?title=Consent_Directive_Use_Cases HL7 CBCC WG Consent Directive Use Cases] | ||
*[http://share.axure.com/2AWHL4/ VA Online Consent Directive prototype] | *[http://share.axure.com/2AWHL4/ VA Online Consent Directive prototype] | ||
*[http://gforge.hl7.org/gf/project/cbcc/docman/FHIR%20Consent%20Directive/Consent%20Directive%20Examples/ Gforge Folder - Consent Directive Examples and state and HIE consent directive policy analysis and governance schemes] | *[http://gforge.hl7.org/gf/project/cbcc/docman/FHIR%20Consent%20Directive/Consent%20Directive%20Examples/ Gforge Folder - Consent Directive Examples and state and HIE consent directive policy analysis and governance schemes] | ||
| + | *[http://gforge.hl7.org/gf/download/docmanfileversion/9146/14152/AHRQ%20Informed%20Consent%20and%20Authorization%20Toolkit%20for%20Minimal%20Risk%20Research.pdf AHRQ Informed Consent and Authorization Toolkit for Minimal Risk Research] | ||
*[http://gforge.hl7.org/gf/download/docmanfileversion/8388/12445/Florida%20Consent%20Directive%20lmited.doc Florida Share All Consent Directive] | *[http://gforge.hl7.org/gf/download/docmanfileversion/8388/12445/Florida%20Consent%20Directive%20lmited.doc Florida Share All Consent Directive] | ||
*[http://gforge.hl7.org/gf/download/docmanfileversion/8386/12447/Florida%20Consent%20Directive.doc Florida Share Partial Consent Directive] | *[http://gforge.hl7.org/gf/download/docmanfileversion/8386/12447/Florida%20Consent%20Directive.doc Florida Share Partial Consent Directive] | ||
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*[http://www.hhs.gov/ocr/privacy/hipaa/modelnotices.html OCR Notice of Privacy Practices - with Patient Friendly templates and good example for FHIR Consent Directive Questionnaire instance] | *[http://www.hhs.gov/ocr/privacy/hipaa/modelnotices.html OCR Notice of Privacy Practices - with Patient Friendly templates and good example for FHIR Consent Directive Questionnaire instance] | ||
*[https://www.healthit.gov/policy-researchers-implementers/personal-health-record-phr-model-privacy-notice ONC Personal Health Record (PHR) Model Privacy Notice - with Patient Friendly templates and good example for FHIR Consent Directive Questionnaire instance] | *[https://www.healthit.gov/policy-researchers-implementers/personal-health-record-phr-model-privacy-notice ONC Personal Health Record (PHR) Model Privacy Notice - with Patient Friendly templates and good example for FHIR Consent Directive Questionnaire instance] | ||
| + | |||
| + | = Longtudinal Use-Case = | ||
| + | From Dan Russler - Since you are working on patient consent, I thought I'd point you to a use case I published a few years ago. It would be nice if the HL7 consent work supported this use case. | ||
| + | See: http://dst.sagepub.com/content/5/3/535 | ||
Latest revision as of 05:39, 28 April 2016
Back to HL7 FHIR Consent Directive Project
Contents
Laws
EU Consent Directive Laws
US Federal Consent Directive Laws
- TITLE 38--VETERANS' BENEFITS PART V--BOARDS, ADMINISTRATIONS, AND SERVICES CHAPTER 73--VETERANS HEALTH ADMINISTRATION--ORGANIZATION AND FUNCTIONS SUBCHAPTER III--PROTECTION OF PATIENT RIGHTS Sec. 7332. Confidentiality of certain medical records. Laws in effect as of January 3, 2007 CITE: 38USC7332. Page 749-750. US Code Online
US State Consent Directive Law
Organization Consent Directive Law
Consent Directive Use Cases and Strawcritters
- iDASH - integrating data for analysis, anonymization, and sharing
- Apple ResearchKit Consent Document
- Kathleen's strawcritter for how FHIR ConsentDirective profile could support Ioana's list of requirements.
- HL7 CBCC WG Consent Directive Use Cases
- VA Online Consent Directive prototype
- Gforge Folder - Consent Directive Examples and state and HIE consent directive policy analysis and governance schemes
- AHRQ Informed Consent and Authorization Toolkit for Minimal Risk Research
- Florida Share All Consent Directive
- Florida Share Partial Consent Directive
- XACML and GUI for 42 CFR samples
- OCR Notice of Privacy Practices - with Patient Friendly templates and good example for FHIR Consent Directive Questionnaire instance
- ONC Personal Health Record (PHR) Model Privacy Notice - with Patient Friendly templates and good example for FHIR Consent Directive Questionnaire instance
Longtudinal Use-Case
From Dan Russler - Since you are working on patient consent, I thought I'd point you to a use case I published a few years ago. It would be nice if the HL7 consent work supported this use case. See: http://dst.sagepub.com/content/5/3/535
