PRO FHIR IG Proposal
This page documents a Pending FHIR IG Proposal
Contents
- 1 Patient Reported Outcomes
- 1.1 Owning work group name
- 1.2 Committee Approval Date:
- 1.3 Contributing or Reviewing Work Groups
- 1.4 FHIR Development Project Insight ID
- 1.5 Scope of coverage
- 1.6 IG Purpose
- 1.7 Content location
- 1.8 Proposed IG realm and code
- 1.9 Maintenance Plan
- 1.10 Short Description
- 1.11 Long Description
- 1.12 Involved parties
- 1.13 Expected implementations
- 1.14 Content sources
- 1.15 Example Scenarios
- 1.16 IG Relationships
- 1.17 Timelines
- 1.18 When IG Proposal Is Complete
- 1.19 FMG Notes
Patient Reported Outcomes
Patient Reported Outcomes FHIR IG
Owning work group name
Committee Approval Date:
2018-02-05
Contributing or Reviewing Work Groups
- Patient Care
- BR&R
- O&O
FHIR Development Project Insight ID
1433
Scope of coverage
The Scope of the IG is to use the following resources for Patient Reported Outcomes (PROs) capture and exchange.
- Questionnaire
- QuestionnaireResponse
- Observation
- ProcedureRequest
IG Purpose
A landscape analysis on the use of PROs in clinical care and research settings were conducted the outcomes of which have identified the lack of standardization in the creation, administration and sharing of PRO data even if they would help with the outcome for patients. In order to improve the use of PRO data in the clinical workflow the following needs have been identified for standardization • Need to identify relevant PROMs for each domain using defined data elements and vocabularies • Need to enable PROM administration within EMRs • Need to enable PROM administration using apps outside of EMRs • Need to share PROM responses to clinicians, researchers and care managers.
Content location
https://github.com/HL7/patient-reported-outcomes
Proposed IG realm and code
U.S
Maintenance Plan
Short Description
This IG provides the necessary guidance to use FHIR for Patient Reported Outcomes.
Long Description
A landscape analysis on the use of PROs in clinical care and research settings were conducted the outcomes of which have identified the lack of standardization in the creation, administration and sharing of PRO data even if they would help with the outcome for patients. In order to improve the use of PRO data in the clinical workflow the following needs have been identified for standardization • Need to identify relevant PROMs for each domain using defined data elements and vocabularies • Need to enable PROM administration within EMRs • Need to enable PROM administration using apps outside of EMRs • Need to share PROM responses to clinicians, researchers and care managers.
Involved parties
ONC
Expected implementations
REACHnet PCORnet CDRN pSCANNER PCORnet CDRN
Content sources
SDC FHIR IG Argonaut Questionnaire Work
Example Scenarios
- Creation and Administering a Physical Function PRO to a Patient after a hip replacement and scoring the results prior to their next appointment.
IG Relationships
None
Timelines
Comment Only Ballot for Sep 2018 STU Ballot in January 2019
When IG Proposal Is Complete
When you have completed your proposal, please send an email to FMGcontact@HL7.org
